Freddie is a remarkable boy. Despite being born with an extra chromosome which means he has down syndrome, he hasn't let this stop him from achieving so much and living his life to the fullest. He has accomplished so much in the short two years he's been with us in this world! In a terribly sad twist to this boys life, he was diagnosed with B cell Acute Lymphoblastic Leukaemia in January 2019, and over the past month he has undergone four courses of chemotherapy.
It does just seem so incredibly unfair that something like this can hit an innocent child, and one so young, and a boy already having to fight for every single thing he achieves in his life. We can only hope that at his age he doesn't completely understand what's going on, but it just goes to show we live in a broken world. You'll often see me on here sharing stories of ordinary people doing incredible things, the kind of things which don't always make front-page news, the kind of things I wish we'd hear more stories about. We often make an effort to share stories about simple things like some teenagers helping an old lady, and man who cleans veterans headstones in his spare time, or random acts of kindness which might seem insignificant sometimes but we think they deserve a mention. The fact is, people like this who make this little bit of extra effort are the salt of the earth, the people which make the world a place worth living, the kind of people who give us hope. Well today ladies and gentleman, it's your chance to be one of those people.
According to his mum kids with downs syndrome face a higher risk of leukemia, and sadly that's what's ended up happening to poor Freddie. His mum says he had to face so many more difficulties and challenges than any kid should have to go through, speech therapy, physio therapy, and occupational therapy all made necessary because of his downs syndrome. And now this. As you can imagine, it's hit the young family pretty hard. Freddie has two sisters who live not too far from the hospital, so they visit him whenever they can. He's been in hospital, at the time of making this video, for a whopping 96 days. Imagine what a chunk of life that is for a child his age!
As you can see from the pictures little Freddie is full of the joy of life. People with Downs Syndrome have been a lot more in the public eye recently, and rightly so. A shameful part of our history is the way we have treated people with special needs in the past, and thankfully those old prejudices are gradually being broken down as more and more people come to realise what a privilege it is to share the planet with a wide variety of different kinds of humans. It is our privilege too, to look after them and give them the care they need, that makes us more human, better people.
Freddie loves listening to music and dancing, he's very keen on Justin Timberlake, Imagine Dragons, Pharel and Maroon 5, always ready to get down for a boogy with the best of them! He also loves visiting his dad at the fire station, but obviously that hasn't happened as much as he would like with him spending so much time in hospital. Freddie's mum spends most nights in bed with him at the hospital so he won't be scared. Freddie is just about to celebrate his 3rd birthday. That's a day that should be full of joy and games and parties and friends, but sadly it looks like Freddie will be spending his special day in hospital.
So, this is just one opportunity to be the kind of people I'm always talking about on here, one of those special people who make a difference to the world, and make it a better place to be. We have a chance to change a really difficult and often dull, tedious and depressing time into something totally different, fun, enjoyable and full of care and love. The great thing about this too is that everybody's not going to see this on Freddie's actual birthday, so don't worry if your timing is off! I think it would be far better if he keeps getting cards and games and toys over a period of a few weeks or months or even years than a truckload of stuff all on the one day, so please don't worry that you've missed the boat if you don't watch this until after his actual birthday, let's pull together and transform this memory for this little boy from a memory of tears and upset to a memory of a time of outpouring love, kindness, fun and excitement! If you would like to send Freddie a little something you can, you can send it to him at MUSC 7B Children’s Hospital
165 Ashley Ave
Charleston, SC 29425
and help keep that beautiful smile on that little boy's face! And make sure you share this in as many places you can to get the word out there, and encourage your family and friends to be the kind of person that makes a difference.
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